Saturday, June 8, 2019
Inclusion, I Don't Always Agree
Fast forward, adulting, a few kids being witness to friends who have kids with disabilities and finally becoming the mother of a child with a significant disability and my tune has changed. I understand I may be in the minority in this post but while my heart yearns for my child to be included as I watch her in situations with typical peers I realize that there is a time and a place but I personally believe our society is pushing too hard. In fact for me, I don't know if I support inclusion. I believe in opportunities for typical kids to learn from children with extra needs but I don't know if the classroom or school setting is always the place to do it. Hear me out.
If we as parents taught empathy and true understanding, first by modeling it ourselves and then by being honest in our answers to questions our sweet cherubs have perhaps the desire for inclusion in the classroom may not be as intense. What most parents of typical kids don't know is that there are laws that allow for the least restrictive classroom and that causes administration to have to place kids into the class as often as the child with extra needs can tolerate. I don't pretend to speak for other parents but for me, this is how I see it.
I have a daughter. She's amazing. I want you to meet her, to watch her, to take in her beauty. I want you to know that this is a long road, a marathon, perhaps in fact a triathlon, one that I need a team behind me giving me support as I raise my child, like my typical children to be her best self. I also know she can be a challenge. I have sat with her, under a weighted blanket as her body writhes in pain, her neurons firing in a way I may never understand. I have sobbed, and wiped tears as I treated wounds that have turned into physical scars I will always wear. I have seen my own children vanish, hiding in their rooms afraid of their sibling and her meltdown and I have fallen into a heap wishing I could change the disability that has taken so much but then there is the flip side and the beauty of the disability. We have walked a new path, having to choose to bring our children to a different school and in doing so we have met our village. We have watched as each of our kids have brought their friends into our home and we have seen kids, like our own that have embraced our daughter and her differences. Certainly school has done their best, giving their entire heart to my daughter and all the children in their care but I have also wondered, does my child negatively impact others. This year she has caused two shelter in place situations. My own children were fearful, were others? I have heard that my children and others have heard her scream (its getting better) and I wonder, has she taken away from your child's education? Have your children come home negatively impacted for her presence in their typical classroom. I also know that she has found love in her class. I know that kids have embraced her and she's made typical "friends" who feel drawn to her and she allows them to grow socially and emotionally perhaps even feeling that they can help her and become more confident in the person that they are.
Two days I woke in a sweat. We were a day away from Field Day. Its a day most typical kids look forward to with anticipation. In fact, one mom I met said her kids were up by 6 a.m. ready to go and participate in a day full of fun and games. For Seraphina, I worried it would be her hell. Assaulted by loud music, busy children, water, heat and games with distinct directions and turn taking that she often gets to avoid when she's in her own little classroom, her little safe haven. I also didn't want to impact other children's fun, nor her aides, teachers and of course the staff and administration by her presence at the day. I called late in the day on Thursday and gave them permission to keep her back. I had a hunch it wasn't going to work but they wanted to try and I am grateful. I think they had to try to meet the legal bindings of her educational plan but my heart was heavy hoping that I was wrong and she could handle it. It started well. She came in beaming. The games were set, the music on and she was flanked by her team. They love her. With the first event I thought I may have been completely wrong. Then it happened. She couldn't wait anymore, the sun rose high in the sky and I lost sight of her. She was cared for. With love. With support but my heart sunk. It was too much. I put her in that situation and put those who love and care for her in that situation as well. While I wanted her to be included, to be with her peers, it wasn't the time, or the place. Luckily they were able to swoop her off and take her inside. She snuggled with those who love her. She watched chicks and she was loved by those who are her team. Still, I wondered, was I right? Perhaps we want inclusion at the cost of our own children whom we are trying to help.
Yesterday I vlogged on my Facebbook Page, Behind the Face of Autism. I tried to open a dialogue about inclusion and perhaps where we as a society can do better. In parenting, in modeling in educating so that our law makers don't feel they need to protect the children with extra needs in the end potentially creating situations our children can't handle. So this, is my thought, inclusion isn't always right. Its not always right for my child. One day it may be, and I hope she will develop so that she can spend Field Day, social outings and even academic experiences with her peer but for now I wonder how we as parents, administrations, teachers and lawmakers can work to change tomorrow to be softer, kinder, more understanding, more accepting. Perhaps inclusion ins't needed in school but first in our hearts.
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